November 8, 2008
Ty's birthmark update
We heard from Cincinnati Children's yesterday. The first step is to fill out the paperwork and fax it in. Once they receive the paperwork and review it they then schedule the appointment. So I was on the Hemangioma and Vascular Malformation Center's website quite a bit last night. Very informative. Looks like they'll know a lot and really be able to help us. We are so fortunate to live near such a big hospital. It was a little upsetting to read much of the info on there but I want to be informed so that I understand what they are telling me when we go. PLUS I keep telling myself every day I cannot worry until I know there is something to worry about. But let's be real. I am worried. But I'm controlling the worry with that statement above so that I can keep living in the moment. I have 3 boys and a wonderful husband that need me! Anway, the packet is very detailed. We're talking 13 pages. I'm almost done filling it out so I can fax it on Monday. The only things left to do are measure the birthmark, attach a picture of the affected area, and measure the affected area so they know the size. The rest of the packet is medical history, personal info, referring doctor info, etc. Thank you for praying for this situation. I'll let you know when his appointment is scheduled. I hope it isn't too far away because I'm ready to hear their opinions.