Today was a long day. But we left with good news! Praise the Lord! The opthamalogy visit was from 12:45-2:30 and all went well. No glaucoma or any other eye problems so the opthamalogist didn't think the port wine stain was causing sturge weber syndrome. They dilated his eyes and checked the pressure and did several other things. Ty was a trooper! Then we went over to the Hemangioma and Vascular Malformation Unit. Our appointment was at 3 but it was at least 4 pm before we were called back. We saw 4 doctors at one time. They were so nice and also agreed that this wasn't Sturge Weber Syndrome. It is officially a port wine stain (type of birthmark). They want to watch it to see if it darkens. If it does we'll start talking about laser treatment to lighten it. As of now we don't need to do anything but return in March. They were so nice at CCH. I was very impressed. The doctors were willing to talk to us and didn't see to be in a rush. That place is HUGE! It felt like we were in an airport or something- having to read all the signs to get to the right building etc. After thinking that Ty could have SWS, I'm so thankful that it is just a port wine stain. We can deal with that. God is good!
Oh, and by the way Tyler weighed 18 lbs, 11oz. And has his first ear infection. So one of the dr's gave him his first prescription.
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5 comments:
That is such great news! Does he really only weigh 8 pounds though??
Whoops! 18 pounds, 11oz!!
That is wonderful news! Rori went to the dr. yesterday, she only weighs 18 lbs. 6 ozs.
That is wonderful news! I'm so happy that your little boy is just fine. I hope his ear infection gets better soon!
Hooray for the great news!!!!
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